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Children and Young People's Continuing Care

Continuing Care is organised differently for children and young people than for adults and is governed by the Department of Health National Framework for Children and Young People's Continuing Care (CYPCC).

A continuing care package will be required when a child or young person has needs arising from disability, accident or illness that cannot be met by existing universal or specialist services alone. Continuing Care does not cover children and young people with care needs that may be met appropriately through existing universal or specialist health services.

This framework covers young people up to their 18th birthday. Thereafter, the National Framework for NHS Continuing Healthcare and NHS-funded Nursing Care and the supporting guidance and tools should be used.

There are significant differences between children and young people’s continuing care and NHS Continuing Healthcare for Adults. Although a child or young person may be in receipt of a package of Continuing Care, they may not be eligible for NHS Continuing Healthcare or NHS Funded Nursing Care once they turn 18.

How to Apply

If you think your child may be eligible for NHS Continuing Care support please contact your community children's nurse and/or social worker or any other health or social care professional involved in your child’s care for advice. If appropriate, they will make a referral to the NHS Berkshire West Clinical Commissioning Group (CCG) Children and Young People’s Continuing Care Service.

Process

Set out below is the application process to assess eligibility for Children and Young People's Continuing Care, however further information about the application and decision making process can be found in this Continuing Care Support information leaflet.

  • we require parental consent to enable us to gather relevant information from professionals involved in your child's care;
  • following consent being given, the referring health or social care professional should complete a pre-assessment checklist, which should be sent to the CYPCC nurse assessor who will determine whether or not a full assessment is necessary.
  • The referrer will be informed of the outcome which should be communicated to the child and/or young person’s family/representative.
  • If a full assessment is indicated, the CYPCC nurse assessor will arrange for reports and information to be sought from the child or young person’s multidisciplinary team (MDT) and a Continuing Care Decision Support Tool (DST) will be completed. Parents and or the child or young person’s representative will be invited to contribute to the assessment and give their views.
  • Following the completion of the decision support tool, the CYPCC nurse assessor will make a recommendation regarding eligibility and the proposed care package, along with all of the gathered information is sent to the CCG.
  • the CCG will make a decision at the CYPCC Multi Agency Panel based on all the supporting evidence and information received from parents, carers and the professionals involved in the child's care.
  • everyone involved will be informed in writing of the decision along with a full rationale.
  • the CCG will aim to ensure that the whole process from referral to decision should not take longer than six weeks; however, given the complexity and variety of needs which the CCG may be assessing, there is some scope for flexibility.

PLEASE NOTE: Diagnosis of a particular disease or condition is not in itself a determinant of a need for continuing care.

Review of eligibility decision

The CCG would like to make sure that you find it as easy as possible to request a review of a continuing care support eligibility decision. We will ensure that reviews are acted on fairly and resolved quickly.

Reasons for review of a decision:-

  • if you disagree with the continuing care eligibility decision

How do I request a review of an eligibility decision?

If you wish to request a review of eligibility decision please write to:-

Children and Young People’s Continuing Care Case Manager
Berkshire West Clinical Commissioning Group
Bath Road
Reading
Berkshire
RG30 2BA